Establishment of common data element for myasthenia gravis and its significance in the researches of phenotypes

Hai-feng LI, Yu HUANG, Xiang⁃jun CHEN

Abstract


Common data element (CDE) is standardized data elements that describe the characteristics of diseases, with the aim of promoting the structure and standardization of data, reducing the missing of important data and narrowing the differences between different researchers in the process of data acquisition. The diversity and heterogeneity of disease phenotypes require rational preparation of CDE to reflect the disease phenotypes from multiple dimensions. This paper introduces the special problems in the establishment of CDE of myasthenia gravis (MG) and discusses the related issues on the process of developing CDE, reviews the CDE of MG domestic and abroad, and discusses the significance of CDE in the researches of MG phenotypes.

DOI：10.3969/j.issn.1672⁃6731.2020.01.007


Keywords


Myasthenia gravis; Common data element (not in MeSH); Phenotype; Review

Full Text: PDF

Creative Commons License
This work is licensed under a Creative Commons Attribution 3.0 License.